News Update from MNCDHH for May 15, 2012

Published 05-15-2012

In this Issue:

Want to be on the Minneapolis Advisory Committee on People with Disabilities? Contact deadline is May 18!

Legislature ended session on May 10, 2012 – here are the final updates:

  1. Minnesota State Academies in Bonding Bill
  2. Newborn Screening Bill

Want to be on the Minneapolis Advisory Committee on People with Disabilities? Contact deadline is May 18!

The City of Minneapolis is looking for deaf, deafblind, or hard of hearing people who live in Minneapolis and who are interested in being representatives on the Minneapolis Advisory Committee on People with Disabilities (MACOPD).

The deadline to apply is May 18, 2012, but time extensions are available if you contact Ken Rodgers now at 651-259-7134 or ken.rodgers@state.mn.us.

This is a Mayor’s Committee, and appointed members serve 2 year terms. The committee meets during 4:30-6:30 pm on the third Wednesday of each month in Room 132 in City Hall.

Parking and/or Metro Mobility coupons are provided for members, and pizza is served each month.

To learn more, visit the MACPOD’s website at:
http://www.minneapolismn.gov/ncr/services/ncr_macopd

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Legislature ended session on May 10, 2012 – here are the final updates:

1) Minnesota State Academies in Bonding Bill

MNCDHH was asked by the Minnesota State Academies, including the Minnesota State Academy for the Deaf (MSAD), to help them lobby for money to fix deteriorating buildings, set up a technology lab, and make safety improvements.

The Legislature agreed to keep $1 million for asset preservation in the final bonding bill for 2012, giving the academies a total of $3.16 million in funding (they also got $2.16 million from last year).

Governor Dayton signed the bonding bill on May 11th, so the Minnesota State Academies will get $1 million for asset preservation.

MNCDHH wants to thank Governor Dayton, Senator David Senjem, Representatives Patty Fritz and Larry Howes for their support of funding for the Minnesota State Academies. Thanks also to the community advocates who showed their support!

Send your thanks for supporting $1 million in bonding for the Minnesota State Academies to:

Governor Mark Dayton, 651-201-3400 or 800-657-3717, http://mn.gov/governor/contact-us/
Senator David Senjem, 651-296-3903, sen.david.senjem@senate.mn
Representative Patti Fritz, 651-296-8237 or 800-292-0012, rep.patti.fritz@house.mn
Representative Larry Howes, 651-296-2451 or 800-706-9962, rep.larry.howes@house.mn

The bonding bill signed by Governor Dayton is available at https://www.revisor.mn.gov/laws/?id=293&year=2012&type=0.

The statute that explains what asset preservation can include is at https://www.revisor.mn.gov/statutes/?id=16B.307.

If you are curious, the list of all state projects funded by bonding is available at http://www.house.leg.state.mn.us/fiscal/files/bond12_2.pdf.

The history of this bill is available on our website at http://www.mncdhh.org/legislation/451/legislation-2012#MSADBonding.

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2) Newborn Screening Bill

MNCDHH supported the efforts of the Minnesota Department of Health to protect the state’s successful newborn screening system which saves the lives of 180 babies every year who are tested for 53 health problems. The system also identifies 250 babies every year who are deaf, deafblind, or hard of hearing.

Governor Dayton signed a newborn screening bill on May 10, 2012 that fixed problems that occurred in November 2011 when the Supreme Court made a decision. The decision required that babies’ test results be destroyed as soon as testing is finished. A discussion of this decision is available at http://www.mncdhh.org/legislation/451/legislation-2012#SummaryHF2697.

The Minnesota Department of Health is happy with the results of the newborn screening bill. They are writing a report now about the changes, which will happen by August 1, 2012.

Here are the positive outcomes:

  1. Parents will be educated on the benefits of the program and on their rights – including the right not to have their babies tested (this is opt-out instead of opt-in).
  2. Parents will also be educated on their options for managing their babies’ blood spots, and what to do about test results.
  3. Babies’ blood spots with negative test results will be stored for 71 days, blood spots with positive test results will be stored for 24 months, and all test results will be stored for 24 months. The consent of parents is not needed for this storage time, and it will let parents and health care providers follow up as needed (for example, if questions come up after testing).
  4. Parents can ask for long-term storage (up to age 18) of their babies’ blood spots and test results.
  5. Parents can also ask for their babies’ blood spots and test results to be used for research that can help save more babies’ lives or help explain the causes of why babies are deaf, deafblind, or hard of hearing.

The newborn screening bill signed by Governor Dayton is available at https://www.revisor.mn.gov/laws/?id=292&doctype=chapter&year=2012&type=0.

More information is available on our website at http://www.mncdhh.org/legislation/451/legislation-2012#NewbornScreening.

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